December 8, 2025
Minutes
Minutes
Attendees via Zoom: Roger Bondeson, Alli Vercoe, Brian Harnish, Bridget McCabe, Cindy Thielen, David Cowing, Dawn Cedrone, Derek Fales, Diane Boas, Don Libby, Eric D, Haley Michaud, Jamie Whitehouse, Jena Jones, John Tabb, Jon McGovern, Julianne Zaharis, K Berry, Keri Lopes, Laura Cordes, Laurie Caldwell, Libby Stone-Sterling, Lily Lin, Lisa Wesel, Liz Burgess, Lorraine DeFreitas, Margaret Cardoza, Mario Cardoza, Mark Pietras, Megan Salvin, Melissa Bliss, Mindy Ward, Molly Thompson, Nancy Gavel, Peter Stuckey, Sara Fleurant, Sara Squires, Shelley Zielinski, Shelly King, someone from ASM, Cullen Ryan, Vickey Merrill, and possibly a few people who joined after the meeting began and left prior to the conclusion of the meeting.
Cullen Ryan introduced himself and welcomed the group. Cullen provided an overview of the Coalition. Minutes from the last meeting were accepted.
Featured Speaker: Roger Bondeson, Associate Director, Division of Operations, DHHS-Office of MaineCare Services. Topic: An Update on Non-Emergency Transportation.
Cullen: Today I am pleased to welcome Roger Bondeson, Associate Director, Division of Operations, with DHHS-Office of MaineCare Services who will be providing an update on Non-Emergency Transportation (NET). This topic is often on everyone’s mind and is a key component in making the system work well. Thank you for being here, Roger!
Roger Bondeson: Thank you for having me! I want to talk a little bit about my history. I used to be involved with affordable housing – both at the City of Portland and MaineHousing. I also used to work for a cap agency. I have had many years in public service and the nonprofit world.
Begin Presentation (Click here for the presentation).
Roger provided a thorough review of the entire PowerPoint presentation. The presentation included an overview of NET and information on the ride process, covered services, non-covered services, types of transportation, NET broker procurement status, the Modivcare bankruptcy filing, performance metrics, the complaint process, number and type of complaints, and causes of missed and late trips. Roger can be reached via email with any questions or comments: [email protected].
Discussion:
-A self-advocate asked about rides for non-medical occasions.
Roger: The purpose of this money is for medical or behavioral health services. Unfortunately, it cannot be used for recreational activities. That said there’s been a lot of thought around this, perhaps someone who wants to do something socially after a medical appointment. I’m working with the Department of Transportation (DOT) on access and mobility and ways to share rides for different purposes. There are more than 150 federally funded transportation services all with their own rules and regulations. We’re trying to figure this out, but these silos start at the federal level.
Derek Fales – DHHS-OADS: Maine is proposing to add non-medical transportation as a covered service under the Lifespan waiver for those that meet qualifications and received a funded offer, once this waiver is rolled out.
The NET Quarterly Report was circulated in the chat.
-A self-advocate stated that Penquis also has a new Freedom Program where you pay a small amount for roundtrip rides to non-medical things.
-A self-advocate stated that transportation has been an issue for ten years and is thankful that it’s being addressed. She stated that when someone has a case manager and then this broker system it sounds like duplication of services. The case manager provides an individual choice of ways they can receive support, and the person selects those resources. The broker system sounds similar in many ways.
Roger: On the medical side, that’s paid for with MaineCare funds, and the Member doesn’t pay and it’s for a very specific purpose. For other kinds of transportation, the case manager likely comes into play. The case manager can also call to arrange rides. It’s not so much duplication it’s finding the right kind of transportation for what is needed.
Derek: For case managers, if someone is receiving HCBS (home and community-based services), the case manager meets with the individual and they should be talking about transportation and the difference between transportation to medical appointments and how the person goes to visit family and participate in activities in the community, etc. Providers generally have their own process for calling to schedule transportation. Transportation is a big component of a person’s plan but there are multiple different ways to look at it. If you’re looking at NET, the major difference with these services and others is you don’t have a choice of provider with NET due to the broker system.
-It was asked if someone’s specific barriers are communicated to the drivers for effective transportation – for example letting the driver know the individual is deaf so that they don’t honk the horn to alert them the ride is there.
Roger: Typically, the case worker will call to arrange the ride and will divulge circumstances that the broker and the provider needs to be aware of before the trip is scheduled. The broker will engage a transporter that can accommodate the needs of the individual. Drivers are credentialed in a number of ways (CPR etc.), but they are not trained direct support professionals (DSPs).
Don Libby – Executive Director, Regional Transportation: We provide rides in Cumberland County. We offer micro transit services in Windham, Standish, Gorham, Raymond, and Harrison. This is a $3 each way van service that's wheelchair accessible that can pick up and drop off anywhere within the town or to the next town over. We started this service about two years ago and were the first in the state to offer it and other towns are adopting it. Some funding comes from state grants, local grants, with Raymond funding their own service. We go through a lot of fingerprinted background checks. How do they function with Uber and Lyft that doesn’t require that?
Roger: They tend not to be used frequently. We do not make exceptions for Uber and Lyft as far as credentialing and background checks. The system will look to see if the driver is credentialed and if the driver isn’t credentialed etc. the ride isn’t paid and then the broker follows up.
-It was stated that if a trip is not paid due to an uncredentialed driver that is too late. That is a major safety risk and reactive as that is after the fact. That puts a very vulnerable population at serious risk.
Don: I have the ability to send rides to Uber or Lyft, but I have no control over who the system gives the ride to.
Roger: They do not use Uber and Lyft for persons with disabilities.
-It was asked if the drivers (specifically Uber and Lyft) receive the money directly.
Roger: No one should be paying a NET driver any money. We pay the brokers on a per member, per month basis. The brokers then contract with transporters and pay the transporters for the trip. The transporter employer then pays their drivers.
-A self-advocate stated that she believes in a person having control over their life the best they can. The Self-directed service system allows the person to be in charge. She stated that the broker system has created extra levels of unneeded bureaucracy, and it doesn’t feel like the individual has any control over this aspect of their life.
Roger: Someone can request a preferred driver if they get to know someone. However, it’s generally not possible to give everyone their preferred choice. If the broker knows and it’s feasible you can certainly ask.
Roger: The broader issue is public awareness about different transportation options available. We’re working with MDOT on legislation for mobility management to create coordination hubs and better match people with appropriate transportation services.
-A self-advocate stated that he lives in a residential program and the provider agency will provide transportation to the day program and activities in the community. He stated that he has had issues with Penquis not having staff to get rides after hours.
Roger: NET is supposed to be accessible 24/7 so thank you for that feedback. After hours rides may take longer but they’re supposed to be available.
-It was asked if taxi services do background checks.
Roger: The taxis the brokers use, yes. I can’t speak for all taxi drivers, but if they’re being used by a broker credentialing is involved.
-A case manager stated that they do use Uber and Lyft in York County for programs. She stated that safety guards for people who are nonverbal are essential.
Roger: I should also mention that brokers are required to do spot checks of drivers, and I receive those reports every month. They look at licenses, vehicle registrations, etc.
-It was asked how brokers and providers ensure that clients get the support they need if they have to go to an appointment alone.
Roger: An escort can be requested to go along with the Member. If that’s the case that has to be requested in advance. Sometimes a driver will show up, and he’s assigned three other Member to pick up and there may not be physical space in the vehicle for the escort. If a broker denies an escort, please let me know because the Department can override that.
-It was stated that from the rider’s perspective, complaints are very underreported. People fear never getting rides again or having further transportation complications if they complain.
Roger: I know we’re not capturing every complaint. We receive hundreds of complaints per month. You have to keep in mind we measure the number of complaints against the volume of rides the broker has. The data I showed you is an average over three months’ complaint rate. If you go to our website, you can see a more granular look. There is momentum in the Legislature to establish an ombudsperson for transportation. This could be a new avenue where people could feel more comfortable raising their voices.
-A case manager stated that she is usually the person who calls the broker with concerns and complaints. She was told by an agent that she was not able to file a complaint for a ride being late. In addition to that the agent was very rude. She hung up, called back, spoke to someone else, and filed her complaint. For the most part the agents at Modivcare are respectful. There could be greater consistency with information that agents disseminate. She added that she has a client in Standish and they’ve had immense difficulty getting him rides to Gray. She was asked to call back for ride resolution and was told there were essentially no rides available, all the rides were going in the opposite direction and that they would have to cancel everyone else’s rides to make it happen.
Roger: I would encourage you to get the name of the person you spoke with. They record their calls and if someone is giving out bad information, we can track that down. Please bring this information to me when it happens again. There are pockets in the state where rides are far more difficult.
Roger: If something doesn’t work, by all means contact our office and we’ll look into it.
Cullen: Thank you for being here, for this excellent presentation, and for engaging in a dialogue with the aim of improving the system. This group has been discussing transportation forever. Our recent chat commenter hit the nail on the head; we’d love to have you back. Thank you for your time and your energy, Roger, well done!
End Presentation (round of applause would have occurred were it not for everyone being muted and on Zoom)
DHHS – Office of Aging and Disability Services (OADS) - www.maine.gov/dhhs/oads
Cullen: I want to congratulate Derek on being promoted from Acting Associate Director to permanent Associate Director of OADS, following Betsy's permanent appointment as Director after Paul's resignation.
Derek Fales – Associate Director:
Licensing Rule Updates: OADS has started a series of webinars for the new Home and Community Support Services Licensing rule, which became effective December 3rd. This joint effort between the Division of Licensing and Certification and OADS and sets standards for services delivering waiver services to individuals. We’ve completed internal staff orientation and the first provider orientation, with an upcoming family session planned. Throughout 2026, we'll roll out additional technical guidance and support. This rule focuses on continuous quality improvement and quality assurance, not punishment. The goal is to ensure consistent service experiences across all Maine counties - someone receiving services in York County should have the same quality experience as someone in Aroostook County.
OADS Licensing Guidance and Review Tools Webinars – As you may know, the way providers of developmental disabilities services are licensed is changing as of late 2025. Moving forward, all agencies that provide case management, group home, shared living, day, and employment services are required to be licensed by the Division of Certification and Licensing (DLC). The Office of Aging and Disability Services (OADS) and DLC will jointly oversee the licensing process.
Licensing standards include administrative requirements, physical plant requirements, and program standards. These licenses are service-specific, meaning that different standards will apply to a provider agency based on the type of services that agency provides. To help agencies prepare to transition to the new licensing system, OADS is holding a series of webinars:
-Provider Review Guidance & Tools: Friday, December 5th, 12-1pm
We look forward to seeing you all and getting ready for a smooth transition!
Lifespan Update: OADS continues its work on finalizing edits to the Lifespan Waiver application but there are no specific updates.
Sara Fleurant:
Housing Update: OADS is currently accepting applications for Housing Support Funds. Each year funds are available to assist individuals with intellectual disabilities or autism in covering their housing costs. Individuals can apply for a one-time lump-sum payment to help with rent, security deposits, or utility costs. Housing Support Funds can support individuals residing in an apartment they rent, home they own, or group home setting. Eligible applicants for this program are individuals receiving service through the Section 21 Comprehensive Waiver and the Section 29 Support Waiver. For more information on Housing Support Funds please visit our Housing Services webpage. To apply, please complete the linked Housing Support Funds Application and submit it to [email protected].
Section 29 Waiver Application Update: OADS will be responding to CMS informal requests for additional information for requested clarification and changes for the Section 29 Waiver application to align with CMS technical requirements, along with continued work towards aligning requirements of the Lifespan waiver with the same technical requirements that Section 29 must follow. The Section 29 waiver is to be renewed for January 2026.
Cullen: Thank you for both being here, for all of this information, and for all of your work! Congratulations again, Derek!
DHHS – Children’s Behavioral Health Services (CBHS), Office of Behavioral Health (OBH) - www.maine.gov/dhhs/obh/support-services/childrens-behavioral-health - No Update
DOL – Division of Vocational Rehabilitation (DVR) - www.maine.gov/rehab/dvr
Libby Stone-Sterling: I also want to congratulate Derek on his promotion and emphasize the strong partnership between Bureau of Rehabilitation Services and OADS!
Self-Employment Initiative: We’re working with OADS to make self-employment services more accessible through vocational rehabilitation. We’re partnering with the National Disability Institute, OHT, and other organizations to provide better training for staff and improved support for individuals interested in starting their own businesses.
IPS Model Implementation: We’re partnering closely with the Office of Behavioral Health (OBH) to implement the Individual Placement and Support (IPS) model, an evidence-based approach that vocational rehabilitation hasn't used extensively in Maine before. Staff training is underway for this new model.
Federal Changes Monitoring: We’re watching national developments where certain Department of Education offices may be moved to other federal agencies. Since Vocational Rehabilitation is federally funded through the Department of Education, we're monitoring potential impacts. Some changes have already occurred - tribal vocational rehabilitation moved to Department of Interior, and some K-12 programs moved to Department of Labor. However, we currently remain within the Department of Education and have received funding for vocational rehabilitation and supported employment programs.
Cullen: Years ago I knew someone who worked at DHHS and as a means of self-employment his son had a food cart and sold food in downtown Portland. It’s great to see support for self-employment. Thank you very much, Libby!
Office of Special Services and Inclusive Education (OSSIE) - www.maine.gov/doe/learning/specialed - No Update
Disability Rights Maine (DRM)
Megan Salvin: With the year coming to an end, I wanted to provide some overall updates on DRM’s work throughout the year.
Guardianship Representation: Over the past fiscal year, DRM represented over 20 individuals with developmental disabilities in guardianship cases. DRM successfully:
Training Success: DRM conducted anti-ableism training at the Maine Legal Year in Review conference, training over 299 attorneys. Cindy Thielen (who was present at this meeting), and Lauren delivered the presentation on combating disability-based discrimination, receiving excellent reviews.
Cullen: Thank you for this, Megan!
Federal & Housing Updates:
Cullen: The biggest update is around the federal budget. The Senate passed a budget agreement on 11/10. The House approved it on 11/12, and the President signed it shortly thereafter. The agreement extends funding for federal programs and services through 1/30/26 and includes 3 fiscal year FY 26 spending bills for Agriculture, Military Construction-Veterans Affairs, and Legislative Branch programs. It fully funds SNAP (and WIC) for all of FY 26, reverses the reductions in force (RIFs) implemented by the Administration since 10/1, and guarantees legally mandated back pay for all federal workers, including those who have been furloughed and those who have been required to work. The Continuing Resolution (CR) does not include extending Affordable Care Act (ACA) subsidies. The Senate began work on its FY 26 appropriations bills, including T-HUD, when the shutdown concluded.
We are closely following everything going on at the federal level which would affect housing, services, and other resources for people with ID/DD. When things arise, we will be sure to make you aware through regular updates and action alerts.
Previous updates that we’re still following:
Medicaid cuts remain a large threat, specifically and most recently in the Budget Reconciliation Bill (HR 1, One Big Beautiful Act) which was signed by the President on 7/4 (see below for more information). The entire Maine Delegation attempted to thwart efforts to include cuts to Medicaid in this reconciliation bill by voting against it. The cuts to Medicaid and SNAP will take effect in the fall of 2026, right around the Mid-Term Elections.
Reconciliation Bill, HR 1, One Big Beautiful Bill Act: On 7/4 President Trump signed HR 1 into law. The bill cuts over $1 trillion in funding for safety net programs, including Medicaid and the Supplemental Nutrition Assistance Program (SNAP). Even with these cuts, the nonpartisan Congressional Budget Office (CBO) estimates the bill will add over $3.9 trillion to the federal deficit over the next decade.
-Includes portions of the AHCIA: The bill does include key pieces of the Affordable Housing Credit Improvement Act (AHCIA) (S 1515 / HR 2725) that would expand and reform the LIHTC program.
-SNAP:
Executive Orders: No new updates. Previous update:
President Trump initiated a series of Executive Orders (EOs) which, if implemented/upheld by the courts, could make it more difficult for everyone to access to an affordable, accessible home. Per NLIHC, the new Administration’s first actions include:
House & Senate FY 26 Budgets (including T-HUD): Updates: The Senate began work on its FY 26 appropriations bills, including T-HUD, when the shutdown concluded.
Senate THUD Budget: No new updates. Previous updates: The Senate passed its FY 26 THUD spending bill that would provide $73.3 billion for HUD, significantly more than the $67.8 billion provided for HUD in the House’s draft FY26 spending bill. Per NLIHC, like the House’s FY26 THUD spending proposal, the Senate’s proposal rejects the funding cuts and policy proposals in the Trump administration’s FY26 appropriations request, which would have overhauled and cut funding for rental and homelessness assistance programs. The bill includes:
House FY 26 THUD Budget: No new updates. Previous updates: On 7/17 the full House Appropriations Committee passed the FY 26 THUD spending bill. After accounting for housing revenues, $96.8 billion is provided for federal transportation and housing programs, a cut of nearly $6 billion, or 6%, from 2025. The proposal would fund HUD at $67.8 billion, a decrease of $939 million from the $74.6 billion provided for HUD programs in FY25. Though this level of funding is not sufficient to maintain investments in affordable housing programs, the bill also largely rejects many of the cuts the President called for in his FY 26 spending request for HUD. Per NLIHC the bill provides the following:
Federal Bills: No new updates. Previous updates:
State Legislature Update
Laura Cordes – MACSP (Maine Association of Community Service Providers): The Second Session, or the “short session”, is scheduled to start 1/7/26, and the statutory adjournment date (the 3rd Wednesday of April) is scheduled for 4/15/26. Cloture occurred September 26, 2025. Only bills deemed to be “emergency bills” and bills put forth by the Governor can be considered, along with bills that were carried over from the previous session. The Legislative Council met to determine what bills will move forward and be considered in the Second Session. The bills considered and their outcomes is available online. Legislative Council has met numerous times and reviewed appeal requests, but the results have not been posted as of today. There’s a Department bill that has to do with the rate system I believe. None of the bills have language yet, but bill language will likely come out before the session starts.
We’re happy to have Jena Jones with us as MACSP’s new Policy and Advocacy Manager, bringing the team to 3 people. This new position will help support the provider community, people supported, and workforce on issues that matter to them. I imagine that Jena will be involved in updating the Google document that this group is used to reviewing.
As this group knows, there are a whole host of bills that either didn’t move through the House and Senate for votes for enactment or didn’t get funded off the Table. The vast majority of these bills were carried over into the next Legislative Session. And there are some bills that were enacted and sent to the Governor, but since the Legislature adjourned Sine Die, they were held by the Governor and will become law when the Legislature next convenes for at least three days. This will likely happen in January. The state has a surplus of $250 million. We’ll be looking at what the Governor is looking to do with this funding in the Supplemental Budget, which the Governor is expected to release in January.
Cullen: Thank you, Laura, and welcome Jena!
Other Business:
Cullen: The Maine Coalition for Housing and Quality Services is approaching its 20th year as an information clearinghouse for people involved in intellectual and developmental disabilities. The coalition brings together parents, service providers, DHHS leadership, advocates, and educators to make the system work better.
I want to express my immense gratitude for this group and its work over the past two decades. I want to specifically thank Vickey who has been the engine behind this whole coalition, maintaining the website, writing detailed minutes, putting together the federal and housing updates that I give in meeting, helping with presenter ideas, etc.
This Coalition has built trust between different parts of the system, helped to erase silos, has allowed people to learn from each other, and provided opportunities for advocates to inform decision makers. DHHS’ participation in these meetings over the years in a real-time Q&A format has helped people stay informed about system developments and eased worries at times of change. I am grateful for everyone's work improving lives of people with intellectual and developmental disabilities in Maine and wish you all a happy and healthy holiday season and New Year.
Cullen: If you know people who could benefit from being here, I encourage you to reach out and have them forward their email to Vickey [email protected] or join by going on the website.
The next meeting will be on Monday, January 12, 2026, 12-2:00pm, via Zoom*
Featured Speaker and Topic: TBD.
Unless changed, Coalition meetings are on the 2nd Monday of the month from 12-2pm.
(In 2026 the October meeting will be the 3rd Monday due to the holiday)
The Maine Coalition for Housing and Quality Services provides equal opportunity for meeting participation. If you wish to attend but require an interpreter or other accommodation, please forward your request two weeks prior to the monthly meeting to [email protected].
Cullen Ryan introduced himself and welcomed the group. Cullen provided an overview of the Coalition. Minutes from the last meeting were accepted.
Featured Speaker: Roger Bondeson, Associate Director, Division of Operations, DHHS-Office of MaineCare Services. Topic: An Update on Non-Emergency Transportation.
Cullen: Today I am pleased to welcome Roger Bondeson, Associate Director, Division of Operations, with DHHS-Office of MaineCare Services who will be providing an update on Non-Emergency Transportation (NET). This topic is often on everyone’s mind and is a key component in making the system work well. Thank you for being here, Roger!
Roger Bondeson: Thank you for having me! I want to talk a little bit about my history. I used to be involved with affordable housing – both at the City of Portland and MaineHousing. I also used to work for a cap agency. I have had many years in public service and the nonprofit world.
Begin Presentation (Click here for the presentation).
Roger provided a thorough review of the entire PowerPoint presentation. The presentation included an overview of NET and information on the ride process, covered services, non-covered services, types of transportation, NET broker procurement status, the Modivcare bankruptcy filing, performance metrics, the complaint process, number and type of complaints, and causes of missed and late trips. Roger can be reached via email with any questions or comments: [email protected].
Discussion:
-A self-advocate asked about rides for non-medical occasions.
Roger: The purpose of this money is for medical or behavioral health services. Unfortunately, it cannot be used for recreational activities. That said there’s been a lot of thought around this, perhaps someone who wants to do something socially after a medical appointment. I’m working with the Department of Transportation (DOT) on access and mobility and ways to share rides for different purposes. There are more than 150 federally funded transportation services all with their own rules and regulations. We’re trying to figure this out, but these silos start at the federal level.
Derek Fales – DHHS-OADS: Maine is proposing to add non-medical transportation as a covered service under the Lifespan waiver for those that meet qualifications and received a funded offer, once this waiver is rolled out.
The NET Quarterly Report was circulated in the chat.
-A self-advocate stated that Penquis also has a new Freedom Program where you pay a small amount for roundtrip rides to non-medical things.
-A self-advocate stated that transportation has been an issue for ten years and is thankful that it’s being addressed. She stated that when someone has a case manager and then this broker system it sounds like duplication of services. The case manager provides an individual choice of ways they can receive support, and the person selects those resources. The broker system sounds similar in many ways.
Roger: On the medical side, that’s paid for with MaineCare funds, and the Member doesn’t pay and it’s for a very specific purpose. For other kinds of transportation, the case manager likely comes into play. The case manager can also call to arrange rides. It’s not so much duplication it’s finding the right kind of transportation for what is needed.
Derek: For case managers, if someone is receiving HCBS (home and community-based services), the case manager meets with the individual and they should be talking about transportation and the difference between transportation to medical appointments and how the person goes to visit family and participate in activities in the community, etc. Providers generally have their own process for calling to schedule transportation. Transportation is a big component of a person’s plan but there are multiple different ways to look at it. If you’re looking at NET, the major difference with these services and others is you don’t have a choice of provider with NET due to the broker system.
-It was asked if someone’s specific barriers are communicated to the drivers for effective transportation – for example letting the driver know the individual is deaf so that they don’t honk the horn to alert them the ride is there.
Roger: Typically, the case worker will call to arrange the ride and will divulge circumstances that the broker and the provider needs to be aware of before the trip is scheduled. The broker will engage a transporter that can accommodate the needs of the individual. Drivers are credentialed in a number of ways (CPR etc.), but they are not trained direct support professionals (DSPs).
Don Libby – Executive Director, Regional Transportation: We provide rides in Cumberland County. We offer micro transit services in Windham, Standish, Gorham, Raymond, and Harrison. This is a $3 each way van service that's wheelchair accessible that can pick up and drop off anywhere within the town or to the next town over. We started this service about two years ago and were the first in the state to offer it and other towns are adopting it. Some funding comes from state grants, local grants, with Raymond funding their own service. We go through a lot of fingerprinted background checks. How do they function with Uber and Lyft that doesn’t require that?
Roger: They tend not to be used frequently. We do not make exceptions for Uber and Lyft as far as credentialing and background checks. The system will look to see if the driver is credentialed and if the driver isn’t credentialed etc. the ride isn’t paid and then the broker follows up.
-It was stated that if a trip is not paid due to an uncredentialed driver that is too late. That is a major safety risk and reactive as that is after the fact. That puts a very vulnerable population at serious risk.
Don: I have the ability to send rides to Uber or Lyft, but I have no control over who the system gives the ride to.
Roger: They do not use Uber and Lyft for persons with disabilities.
-It was asked if the drivers (specifically Uber and Lyft) receive the money directly.
Roger: No one should be paying a NET driver any money. We pay the brokers on a per member, per month basis. The brokers then contract with transporters and pay the transporters for the trip. The transporter employer then pays their drivers.
-A self-advocate stated that she believes in a person having control over their life the best they can. The Self-directed service system allows the person to be in charge. She stated that the broker system has created extra levels of unneeded bureaucracy, and it doesn’t feel like the individual has any control over this aspect of their life.
Roger: Someone can request a preferred driver if they get to know someone. However, it’s generally not possible to give everyone their preferred choice. If the broker knows and it’s feasible you can certainly ask.
Roger: The broader issue is public awareness about different transportation options available. We’re working with MDOT on legislation for mobility management to create coordination hubs and better match people with appropriate transportation services.
-A self-advocate stated that he lives in a residential program and the provider agency will provide transportation to the day program and activities in the community. He stated that he has had issues with Penquis not having staff to get rides after hours.
Roger: NET is supposed to be accessible 24/7 so thank you for that feedback. After hours rides may take longer but they’re supposed to be available.
-It was asked if taxi services do background checks.
Roger: The taxis the brokers use, yes. I can’t speak for all taxi drivers, but if they’re being used by a broker credentialing is involved.
-A case manager stated that they do use Uber and Lyft in York County for programs. She stated that safety guards for people who are nonverbal are essential.
Roger: I should also mention that brokers are required to do spot checks of drivers, and I receive those reports every month. They look at licenses, vehicle registrations, etc.
-It was asked how brokers and providers ensure that clients get the support they need if they have to go to an appointment alone.
Roger: An escort can be requested to go along with the Member. If that’s the case that has to be requested in advance. Sometimes a driver will show up, and he’s assigned three other Member to pick up and there may not be physical space in the vehicle for the escort. If a broker denies an escort, please let me know because the Department can override that.
-It was stated that from the rider’s perspective, complaints are very underreported. People fear never getting rides again or having further transportation complications if they complain.
Roger: I know we’re not capturing every complaint. We receive hundreds of complaints per month. You have to keep in mind we measure the number of complaints against the volume of rides the broker has. The data I showed you is an average over three months’ complaint rate. If you go to our website, you can see a more granular look. There is momentum in the Legislature to establish an ombudsperson for transportation. This could be a new avenue where people could feel more comfortable raising their voices.
-A case manager stated that she is usually the person who calls the broker with concerns and complaints. She was told by an agent that she was not able to file a complaint for a ride being late. In addition to that the agent was very rude. She hung up, called back, spoke to someone else, and filed her complaint. For the most part the agents at Modivcare are respectful. There could be greater consistency with information that agents disseminate. She added that she has a client in Standish and they’ve had immense difficulty getting him rides to Gray. She was asked to call back for ride resolution and was told there were essentially no rides available, all the rides were going in the opposite direction and that they would have to cancel everyone else’s rides to make it happen.
Roger: I would encourage you to get the name of the person you spoke with. They record their calls and if someone is giving out bad information, we can track that down. Please bring this information to me when it happens again. There are pockets in the state where rides are far more difficult.
Roger: If something doesn’t work, by all means contact our office and we’ll look into it.
Cullen: Thank you for being here, for this excellent presentation, and for engaging in a dialogue with the aim of improving the system. This group has been discussing transportation forever. Our recent chat commenter hit the nail on the head; we’d love to have you back. Thank you for your time and your energy, Roger, well done!
End Presentation (round of applause would have occurred were it not for everyone being muted and on Zoom)
DHHS – Office of Aging and Disability Services (OADS) - www.maine.gov/dhhs/oads
Cullen: I want to congratulate Derek on being promoted from Acting Associate Director to permanent Associate Director of OADS, following Betsy's permanent appointment as Director after Paul's resignation.
Derek Fales – Associate Director:
Licensing Rule Updates: OADS has started a series of webinars for the new Home and Community Support Services Licensing rule, which became effective December 3rd. This joint effort between the Division of Licensing and Certification and OADS and sets standards for services delivering waiver services to individuals. We’ve completed internal staff orientation and the first provider orientation, with an upcoming family session planned. Throughout 2026, we'll roll out additional technical guidance and support. This rule focuses on continuous quality improvement and quality assurance, not punishment. The goal is to ensure consistent service experiences across all Maine counties - someone receiving services in York County should have the same quality experience as someone in Aroostook County.
OADS Licensing Guidance and Review Tools Webinars – As you may know, the way providers of developmental disabilities services are licensed is changing as of late 2025. Moving forward, all agencies that provide case management, group home, shared living, day, and employment services are required to be licensed by the Division of Certification and Licensing (DLC). The Office of Aging and Disability Services (OADS) and DLC will jointly oversee the licensing process.
Licensing standards include administrative requirements, physical plant requirements, and program standards. These licenses are service-specific, meaning that different standards will apply to a provider agency based on the type of services that agency provides. To help agencies prepare to transition to the new licensing system, OADS is holding a series of webinars:
-Provider Review Guidance & Tools: Friday, December 5th, 12-1pm
- This session will describe what to expect during a review and how review tools are structured. You can sign up here.
- This session will describe OADS licensing standards for provider agencies. It will not address DLC licensing standards. You can sign up here.
- This session will describe standards for corrective action plans and how to respond to common types of deficiencies agencies may have. You can sign up here.
- Meeting information and future quarterly dates are listed on the website.
- Click this link to attend: Passcode:61189137
We look forward to seeing you all and getting ready for a smooth transition!
Lifespan Update: OADS continues its work on finalizing edits to the Lifespan Waiver application but there are no specific updates.
Sara Fleurant:
Housing Update: OADS is currently accepting applications for Housing Support Funds. Each year funds are available to assist individuals with intellectual disabilities or autism in covering their housing costs. Individuals can apply for a one-time lump-sum payment to help with rent, security deposits, or utility costs. Housing Support Funds can support individuals residing in an apartment they rent, home they own, or group home setting. Eligible applicants for this program are individuals receiving service through the Section 21 Comprehensive Waiver and the Section 29 Support Waiver. For more information on Housing Support Funds please visit our Housing Services webpage. To apply, please complete the linked Housing Support Funds Application and submit it to [email protected].
Section 29 Waiver Application Update: OADS will be responding to CMS informal requests for additional information for requested clarification and changes for the Section 29 Waiver application to align with CMS technical requirements, along with continued work towards aligning requirements of the Lifespan waiver with the same technical requirements that Section 29 must follow. The Section 29 waiver is to be renewed for January 2026.
Cullen: Thank you for both being here, for all of this information, and for all of your work! Congratulations again, Derek!
DHHS – Children’s Behavioral Health Services (CBHS), Office of Behavioral Health (OBH) - www.maine.gov/dhhs/obh/support-services/childrens-behavioral-health - No Update
DOL – Division of Vocational Rehabilitation (DVR) - www.maine.gov/rehab/dvr
Libby Stone-Sterling: I also want to congratulate Derek on his promotion and emphasize the strong partnership between Bureau of Rehabilitation Services and OADS!
Self-Employment Initiative: We’re working with OADS to make self-employment services more accessible through vocational rehabilitation. We’re partnering with the National Disability Institute, OHT, and other organizations to provide better training for staff and improved support for individuals interested in starting their own businesses.
IPS Model Implementation: We’re partnering closely with the Office of Behavioral Health (OBH) to implement the Individual Placement and Support (IPS) model, an evidence-based approach that vocational rehabilitation hasn't used extensively in Maine before. Staff training is underway for this new model.
Federal Changes Monitoring: We’re watching national developments where certain Department of Education offices may be moved to other federal agencies. Since Vocational Rehabilitation is federally funded through the Department of Education, we're monitoring potential impacts. Some changes have already occurred - tribal vocational rehabilitation moved to Department of Interior, and some K-12 programs moved to Department of Labor. However, we currently remain within the Department of Education and have received funding for vocational rehabilitation and supported employment programs.
Cullen: Years ago I knew someone who worked at DHHS and as a means of self-employment his son had a food cart and sold food in downtown Portland. It’s great to see support for self-employment. Thank you very much, Libby!
Office of Special Services and Inclusive Education (OSSIE) - www.maine.gov/doe/learning/specialed - No Update
Disability Rights Maine (DRM)
Megan Salvin: With the year coming to an end, I wanted to provide some overall updates on DRM’s work throughout the year.
Guardianship Representation: Over the past fiscal year, DRM represented over 20 individuals with developmental disabilities in guardianship cases. DRM successfully:
- Contested 3 initial petitions, preventing unnecessary guardianships.
- Terminated 10 guardianships.
- Limited 4 others, allowing individuals to retain or regain decision-making rights.
- In 7 cases, the guardian or petitioner was accused of subjecting the person to abuse, neglect, or financial exploitation.
- Limited community access due to staffing shortages or restrictive practices
- Restrictions on personal autonomy (lack of choice in schedules, meals, roommates, housing)
- Staffing failures including staff sleeping on shift (which DRM staff witnessed during visits)
- Inadequate visit notices
- Improper use of restraints
- Unreported incidents
Training Success: DRM conducted anti-ableism training at the Maine Legal Year in Review conference, training over 299 attorneys. Cindy Thielen (who was present at this meeting), and Lauren delivered the presentation on combating disability-based discrimination, receiving excellent reviews.
Cullen: Thank you for this, Megan!
Federal & Housing Updates:
Cullen: The biggest update is around the federal budget. The Senate passed a budget agreement on 11/10. The House approved it on 11/12, and the President signed it shortly thereafter. The agreement extends funding for federal programs and services through 1/30/26 and includes 3 fiscal year FY 26 spending bills for Agriculture, Military Construction-Veterans Affairs, and Legislative Branch programs. It fully funds SNAP (and WIC) for all of FY 26, reverses the reductions in force (RIFs) implemented by the Administration since 10/1, and guarantees legally mandated back pay for all federal workers, including those who have been furloughed and those who have been required to work. The Continuing Resolution (CR) does not include extending Affordable Care Act (ACA) subsidies. The Senate began work on its FY 26 appropriations bills, including T-HUD, when the shutdown concluded.
We are closely following everything going on at the federal level which would affect housing, services, and other resources for people with ID/DD. When things arise, we will be sure to make you aware through regular updates and action alerts.
Previous updates that we’re still following:
Medicaid cuts remain a large threat, specifically and most recently in the Budget Reconciliation Bill (HR 1, One Big Beautiful Act) which was signed by the President on 7/4 (see below for more information). The entire Maine Delegation attempted to thwart efforts to include cuts to Medicaid in this reconciliation bill by voting against it. The cuts to Medicaid and SNAP will take effect in the fall of 2026, right around the Mid-Term Elections.
Reconciliation Bill, HR 1, One Big Beautiful Bill Act: On 7/4 President Trump signed HR 1 into law. The bill cuts over $1 trillion in funding for safety net programs, including Medicaid and the Supplemental Nutrition Assistance Program (SNAP). Even with these cuts, the nonpartisan Congressional Budget Office (CBO) estimates the bill will add over $3.9 trillion to the federal deficit over the next decade.
-Includes portions of the AHCIA: The bill does include key pieces of the Affordable Housing Credit Improvement Act (AHCIA) (S 1515 / HR 2725) that would expand and reform the LIHTC program.
- Low-Income Housing Tax Credit (LIHTC) Expansion: The act permanently increases LIHTC allocations and reduces the bond financing requirement for certain properties. These changes are anticipated to support the creation of over a million additional affordable homes over the next decade.
- Opportunity Zone (OZ) Program: The Reconciliation Bill makes the OZ program permanent with changes to eligibility and a requirement for a percentage of zones to be in rural areas.
- Other Relevant Provisions: The bill includes extensions of the New Markets Tax Credit and bonus depreciation, along with a phase-down of certain green energy tax credits.
- Cuts Medicaid by more than $1 trillion – the largest cut in history.
- Work Requirements: The bill expands the provision taking away Medicaid from people who don’t meet a work requirement so that it would apply to parents enrolled through the Medicaid expansion who have children older than 13.
- Severely limits how some states finance their Medicaid programs.
- Per capita cap/block granting
- Cuts eligibility across all major health coverage programs for most categories of immigrants living lawfully in the U.S.
- $430 million to $522 million per year in Medicaid costs could be shifted to the State.
- 4,300 state jobs could be lost.
- $700 million in potential lost hospital revenue annually.
- The changes could lead to tens of thousands of Mainers losing health coverage altogether.
-SNAP:
- SNAP would be cut by $186 billion through 2034, according to the Congressional Budget Office (CBO) (about a 20% cut). This is the largest SNAP cut in history, which could lead some states to end their program entirely.
- Most states would be required to pay 5 to 15 percent of food benefits. If a state can’t make up for these massive federal cuts with tax increases or spending cuts elsewhere in its budget, it would have to cut its SNAP program (such as by restricting eligibility or making it harder for people to enroll) or it could opt out of the program altogether.
- Work Requirements: Under current SNAP rules, most non-elderly, non-disabled adults without children in their homes can’t receive benefits for more than three months out of every three years if they don’t document they are working at least 20 hours per week or prove they qualify for an exemption. The Bill expands this restriction to older adults aged 55-64 and to parents whose youngest child is at least 14 years old, while also significantly limiting waivers for areas with poor economic conditions. The final version of this bill strips current exemptions from the work requirement for veterans, people experiencing homelessness, and former foster youth.
- Cut food benefits by an average of $100 per month for about 600,000 low-income households by eliminating an administrative simplification for calculating utility expenses for many households.
- Up to 30,000 people on SNAP in Maine who were previously exempt from work requirements will likely now have to meet them.
- Approximately 2,000 New Mainers are expected to lose SNAP eligibility.
- As many as 31,000 residents are at risk of losing some or all of their SNAP benefits.
Executive Orders: No new updates. Previous update:
President Trump initiated a series of Executive Orders (EOs) which, if implemented/upheld by the courts, could make it more difficult for everyone to access to an affordable, accessible home. Per NLIHC, the new Administration’s first actions include:
- Directing federal agencies to terminate all diversity, equity, inclusion, and accessibility (DEIA) practices and policies and rescind previous executive actions expanding DEI efforts to underserved communities.
- Institute a hiring freeze which would prevent HUD from hiring essential staff.
- Denying fair housing and civil rights protections to LGBTQ individuals.
- Directing federal agencies to prevent sanctuary jurisdictions, or jurisdictions that limit or deny cooperation with federal immigration enforcement, from receiving federal investments. If this EO is used to deny states and localities access to federal funding, it could undermine local governments’ ability to help families purchase a home and build more affordable rental housing.
House & Senate FY 26 Budgets (including T-HUD): Updates: The Senate began work on its FY 26 appropriations bills, including T-HUD, when the shutdown concluded.
Senate THUD Budget: No new updates. Previous updates: The Senate passed its FY 26 THUD spending bill that would provide $73.3 billion for HUD, significantly more than the $67.8 billion provided for HUD in the House’s draft FY26 spending bill. Per NLIHC, like the House’s FY26 THUD spending proposal, the Senate’s proposal rejects the funding cuts and policy proposals in the Trump administration’s FY26 appropriations request, which would have overhauled and cut funding for rental and homelessness assistance programs. The bill includes:
- Section 8: $37.4 billion, an increase from $36.04 billion in FY 25. This includes an additional $1.82 billion to renew existing Tenant-Based Rental Assistance (TBRA) contracts, totaling $33.97 billion for contract renewals in FY26.
- Project-Based Section 8: $17.8 billion for PBS8, an increase from $16.8 billion in FY 2025.
- FedHOME: $1.25 billion in funding for the HOME Investment Partnership program, which was zeroed out in the President’s proposal and the House’s draft FY26 THUD spending bill.
House FY 26 THUD Budget: No new updates. Previous updates: On 7/17 the full House Appropriations Committee passed the FY 26 THUD spending bill. After accounting for housing revenues, $96.8 billion is provided for federal transportation and housing programs, a cut of nearly $6 billion, or 6%, from 2025. The proposal would fund HUD at $67.8 billion, a decrease of $939 million from the $74.6 billion provided for HUD programs in FY25. Though this level of funding is not sufficient to maintain investments in affordable housing programs, the bill also largely rejects many of the cuts the President called for in his FY 26 spending request for HUD. Per NLIHC the bill provides the following:
- Section 8: $35.26 billion – a $773 million decrease vs FY 25 this includes level funding, $32.14 billion, to renew existing HCV contracts. Because the cost of rent increases from year to year, flat funding acts as a cut to rental assistance programs. Per CBPP this would result in more than 400,000 fewer people receiving assistance to help them afford housing.
- Project-Based Section 8: $17.12 billion – a $237 million increase vs FY 25, which is at least $500 million short of what is needed to prevent the eviction of nearly 45,000 very low- and low-income households.
- FedHOME: Eliminates HOME completely.
Federal Bills: No new updates. Previous updates:
- The Home Accessibility Tax Credit Act: Introduced by Senators King and Welch, this bill would establish a refundable tax credit for eligible home modifications designed to improve accessibility — saving both Americans with the highest risk of falling, as well as taxpayers, from the high medical costs associated with falls.
- S 1234 / HR 2540 SSI Savings Penalty Elimination Act: This is a bipartisan, bicameral bill that would amend title XVI of the Social Security Act to update the resource limit for supplemental security income eligibility. This bill would update SSI’s asset limits for the first time since the 1980s to ensure people with disabilities and seniors are able to prepare themselves for a financial emergency without putting the benefits that they rely on to live at risk.
- S 343/HR 869 Keep our PACT Act: This bill would require full funding of part A of title I of the Elementary and Secondary Education Act of 1965 and the Individuals with Disabilities Education Act.
- HR 1634 Think DIFFERENTLY About Disability Employment Act: This bill would provide for a memorandum of understanding between the Small Business Administration and the National Council on Disability to increase employment opportunities for individuals with disabilities, and for other purposes.
- HR 1757 EMPSA Act: This bill would amend title XVI of the Social Security Act to provide that the supplemental security income benefits of adults with intellectual or developmental disabilities shall not be reduced by marriage.
- S 466 Fairness for Disabled Young Adults Act: This bill would amend title II of the Social Security Act to increase the age threshold for eligibility for child's insurance benefits on the basis of disability.
State Legislature Update
Laura Cordes – MACSP (Maine Association of Community Service Providers): The Second Session, or the “short session”, is scheduled to start 1/7/26, and the statutory adjournment date (the 3rd Wednesday of April) is scheduled for 4/15/26. Cloture occurred September 26, 2025. Only bills deemed to be “emergency bills” and bills put forth by the Governor can be considered, along with bills that were carried over from the previous session. The Legislative Council met to determine what bills will move forward and be considered in the Second Session. The bills considered and their outcomes is available online. Legislative Council has met numerous times and reviewed appeal requests, but the results have not been posted as of today. There’s a Department bill that has to do with the rate system I believe. None of the bills have language yet, but bill language will likely come out before the session starts.
We’re happy to have Jena Jones with us as MACSP’s new Policy and Advocacy Manager, bringing the team to 3 people. This new position will help support the provider community, people supported, and workforce on issues that matter to them. I imagine that Jena will be involved in updating the Google document that this group is used to reviewing.
As this group knows, there are a whole host of bills that either didn’t move through the House and Senate for votes for enactment or didn’t get funded off the Table. The vast majority of these bills were carried over into the next Legislative Session. And there are some bills that were enacted and sent to the Governor, but since the Legislature adjourned Sine Die, they were held by the Governor and will become law when the Legislature next convenes for at least three days. This will likely happen in January. The state has a surplus of $250 million. We’ll be looking at what the Governor is looking to do with this funding in the Supplemental Budget, which the Governor is expected to release in January.
Cullen: Thank you, Laura, and welcome Jena!
Other Business:
Cullen: The Maine Coalition for Housing and Quality Services is approaching its 20th year as an information clearinghouse for people involved in intellectual and developmental disabilities. The coalition brings together parents, service providers, DHHS leadership, advocates, and educators to make the system work better.
I want to express my immense gratitude for this group and its work over the past two decades. I want to specifically thank Vickey who has been the engine behind this whole coalition, maintaining the website, writing detailed minutes, putting together the federal and housing updates that I give in meeting, helping with presenter ideas, etc.
This Coalition has built trust between different parts of the system, helped to erase silos, has allowed people to learn from each other, and provided opportunities for advocates to inform decision makers. DHHS’ participation in these meetings over the years in a real-time Q&A format has helped people stay informed about system developments and eased worries at times of change. I am grateful for everyone's work improving lives of people with intellectual and developmental disabilities in Maine and wish you all a happy and healthy holiday season and New Year.
Cullen: If you know people who could benefit from being here, I encourage you to reach out and have them forward their email to Vickey [email protected] or join by going on the website.
The next meeting will be on Monday, January 12, 2026, 12-2:00pm, via Zoom*
Featured Speaker and Topic: TBD.
Unless changed, Coalition meetings are on the 2nd Monday of the month from 12-2pm.
(In 2026 the October meeting will be the 3rd Monday due to the holiday)
The Maine Coalition for Housing and Quality Services provides equal opportunity for meeting participation. If you wish to attend but require an interpreter or other accommodation, please forward your request two weeks prior to the monthly meeting to [email protected].